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Liang Ruoxu did not understand clinical medicine, but he also realized the seriousness of the problem.
"Should it be a rare disease? Can it be cured with China's medical standards?"
"It's a rare disease and it can be cured."
"That's good." Liang Ruoxu said: "Although the child is a little small, as long as it can be cured, the problem is not big."
"Although it can be cured, it cannot be cured."
"Huh? What do you mean?"
"There are 700,000 medicines to treat SMA. Even if the symptoms are the mildest, it takes four medicines to heal." Lin Yi looked at Liang Ruoxu, "How do you let them treat?"
Liang Ruoxu was startled, and his expression fell silent.
When they met just now, the couple introduced their identities.
They came to work in Zhonghai from the county seat.
According to the current standards, the two of them worked hard, without eating or drinking, and earning 200,000 yuan a year is the limit.
Only if you don't eat or drink for three and a half years, and you are still working hard to make money, you can get one.
If the mildest symptoms are treated, it will take at least 14 years.
Even if they can persist, the child may not be able to persist.
As Lin Yi said, this disease can be cured, but it cannot be cured.
"If it is really diagnosed, would you choose to help them?" Liang Ruoxu asked.
"will not."
Lin Yi shook his head, "I am a human being, not a god, and throughout China, there are more rare diseases than SMA. Do I have to help every one of them? Even if I have such thoughts, I can't help. "
"I know what you mean." Liang Ruoxu said: "Would you like me to call for funds to help them."
"Nor." Lin Yi looked at Liang Ruoxu and said:
"You are a magistrate. You have to know your position better than me. Sometimes people must be cold-blooded, otherwise the world order will be chaotic."
About half an hour later, Sun Dawei walked in from outside.
"How is the situation?" Lin Yi asked.
"I only did a preliminary examination. I took the results and conducted a simple video consultation with several other directors. It was basically settled, and it was SMA, spinal muscular atrophy." Sun Dawei said:
"Tomorrow, the doctors from other departments will come, let them do a comprehensive examination, and they will be completely diagnosed."
"What are you going to do with this illness?"
Sun Dawei shrugged and said, "I can't help. After the diagnosis is complete, I will let them go back. The Noxina sodium for the treatment of SMA costs 700,000 bottles, and it has not been included in the medical insurance. According to their conditions, they must not be able to afford it. Yes, there is not much we can do, hey, pity that kid."
"All right." Lin Yi said:
"Let's try our best. There are many things that can't be done."
"Isn't it?" Sun Dawei said: "I just sent away a patient like this half a year ago, and now I have another one. I can't cure it.
Lin Yi nodded, "Then do it in the usual way, I'll go first."
"Okay, it's okay to come out and drink."
"it is good."
Leaving the office, the two walked towards the parking lot.
"Why is this medicine so expensive?" Liang Ruoxu said:
"Does it monopolize the market like Pfizer?"
"It is indeed a monopoly, but they are different from Pfizer. They have two completely different properties." Lin Yi said:
"Pfizer’s ibupropine has many drugs of the same type on the market, but the effect is not as good as theirs. In addition, this is still a cardiovascular medicine that needs to be taken every day, so the cost of research and development is shared by the vast majority. The patients don’t actually have much money, so at that time, I dared to bargain with them brazenly."
"However, the treatment of SMA is not the same as sodium narcina. As far as I know, it takes about 13 years on average to develop this rare drug. Taking into account the capital factor, the cost may be as high as 1.8 billion US dollars, and the most important thing is Even if you invest, the cost of time and money may not be successful."
"From the selection of the target to the screening of the lead compound, to the 123 phase of clinical optimization, and to the final application for marketing. After more than ten years, the final success rate is less than 4%. Any problem in any link will Cause all investment to fall short."
"Moreover, in 13 years, 1.8 billion US dollars are only for successfully researched drugs. Prior to this, there must have been countless failures, and these failed products are also costly. This is why they are so expensive and treat them. They are still rare diseases, so they are naturally expensive."
Although Liang Ruoxu was an airborne layman, after listening to Lin Yi's explanation, he fully understood what was going on.
Pharmaceutical companies are not wrong. Compared with a living life, the figure of 700,000 is not expensive, but this cold weight is not something everyone can bear.
"There are still many rare diseases in the world, and the drugs to treat them are more expensive."
"Indeed, it is the same medicine for SMA, and there are 15 million bottles of Zogensma, and the original price of Nosina sodium was 870,000. Now it has dropped to 700,000. A lot has been discussed." Lin Yi said :
"In addition, drugs for the treatment of LPLD sold for US$1.21 million, drugs for the treatment of UCD for US$790,000, drugs for the treatment of Pompe disease for US$620,000, and drugs for the treatment of hyperammonemia US$580,000..."
"There are countless rare diseases, and their treatment costs are astronomical to the common people. We can't accuse pharmaceutical companies of profiteering. That would be too selfish."
"Huh~~~" Liang Ruoxu took a deep breath, "but for us, this is always a problem."
"Yes." Lin Yi shrugged, with a calm expression, as if he was used to facing such things and said:
"With my current financial resources, it is no problem to help one person, or even a hundred. But in the face of the huge population base, the number of people suffering from these rare diseases is not a small number, and I really can't help. "
"This matter seems to be the only way to go."
In fact, Liang Ruoxu and Lin Yi ~www.novelhall.com~ both face the same problem.
They all have super personal abilities. It's okay to help one or ten, but they can't help everyone.
As Lin Yi said just now, everyone is human, not gods.
"That's the only way to go, just let this matter go, don't think too much about it." Lin Yi opened the car door and said:
"I have other things to leave beforehand, not with you."
"I sold you such an important piece of information today, don't you want to express it?" Liang Ruoxu said while looking at Lin Yi.
"Go to my house another day, I'll cook for you, let's have a candlelight dinner by the pool, what do you think."
"not very good."
"I'm telling you, most people can't eat the food I cook. Give you the opportunity to cherish it."
"Don't talk nonsense to me there, you just want to see me go swimming in a swimsuit!"